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A few days ago I got to go to the beach, Kevin wasn't sure it was going to happen so he hadn't told me about the possibility, but some how I managed to wake up on the day doing well enough he decided to risk it. So with sunglasses, lots of sunscreen, and a large hat in hand, we went with his parents to the beach.
The first thing Kevin did when he got there was make a heart in the sand, then I put in our initials.

Kevin then went to look for sand dollars while his parents went on a walk and I stayed put sitting in a chair watching the waves. After a while his parents came back as did Kevin and we all sat for a while. Then Kevin decided to walk in a different direction for the sand dollars and I am not sure where his father disappeared to, but his mother and I continued to sit and watch the waves.
After a short while a father and daughter (young, maybe 5 to 6) came by, he was trying to fish in the ocean, she was just running around collecting things off the beach and shoving them into his pockets. After a while she sat somewhat near us and started talking; it was windy enough we couldn't hear what she was saying, but that didn't stop her from having a rather long running conversation. And then after she finished her story she walked a little ways a way and then started rolling in the sand and for some reason I can't explain, I all the sudden realized what I should be doing. My vision of this little girl changed and it was like she was an angle telling me what to do, reminding me of who I really am.
Once Kevin got back I asked him if it was okay to lay in the sand directly since I knew the shirt I was wearing was new, but I wasn't there when he bought it so I didn't know if it was something he would get terribly upset over if I messed it up laying on the beach. He said he was fine with me laying on the beach, he didn't think it would be a problem. So, much to the amusement of everyone I am sure, I laid down on the sand a few feet from everyone else and focused on the sound of the waves. I must of entered a meditative state because when the waves eventually got close enough to touch my feet it didn't feel cold and when Kevin had first gotten me onto the beach he had held me up so I could put my feet in the water and it had been freezing.
Afterwards I sat up on the beach, but still on the sand and just continued to watch the waves.

(The most of me you will likely ever see on this journal.)

(I just liked this picture.)
After a while longer we realized that I had been out in the sun for well over an hour and even with sunscreen I was risking sunburn because I burn easily (I had a really mild one a bit of both arms, but it wasn't too bad) so we went back inside and I changed to long pants and a sweater. But I told Kevin, that for the first time, since the migraines started, so over three years now, I felt like myself, for about 30 minutes, while laying and sitting on the beach directly on the sand. Unfortunately once we left the beach the feeling went away, but 30 minutes after 3 years was quite amazing so I will be happy that I even got that much time.
It wasn't much longer after this that I ended up feeling nausea again and a migraine came on and I was basically non-functional for the rest of the day although they did wheel me around in the chair for a while outside on a "walk" but by then I was so light sensitive again I could only look where the sun wasn't and had to shut my eyes a lot. But I enjoyed the day and hope that we can go again so I can get a few more minutes of feeling normal for a little while. Now Kevin is trying to figure out how we can afford to move to a beach town so that he can get me on the beach every week since he knows I haven't felt like myself for a very long time.
The first thing Kevin did when he got there was make a heart in the sand, then I put in our initials.
Kevin then went to look for sand dollars while his parents went on a walk and I stayed put sitting in a chair watching the waves. After a while his parents came back as did Kevin and we all sat for a while. Then Kevin decided to walk in a different direction for the sand dollars and I am not sure where his father disappeared to, but his mother and I continued to sit and watch the waves.
After a short while a father and daughter (young, maybe 5 to 6) came by, he was trying to fish in the ocean, she was just running around collecting things off the beach and shoving them into his pockets. After a while she sat somewhat near us and started talking; it was windy enough we couldn't hear what she was saying, but that didn't stop her from having a rather long running conversation. And then after she finished her story she walked a little ways a way and then started rolling in the sand and for some reason I can't explain, I all the sudden realized what I should be doing. My vision of this little girl changed and it was like she was an angle telling me what to do, reminding me of who I really am.
Once Kevin got back I asked him if it was okay to lay in the sand directly since I knew the shirt I was wearing was new, but I wasn't there when he bought it so I didn't know if it was something he would get terribly upset over if I messed it up laying on the beach. He said he was fine with me laying on the beach, he didn't think it would be a problem. So, much to the amusement of everyone I am sure, I laid down on the sand a few feet from everyone else and focused on the sound of the waves. I must of entered a meditative state because when the waves eventually got close enough to touch my feet it didn't feel cold and when Kevin had first gotten me onto the beach he had held me up so I could put my feet in the water and it had been freezing.
Afterwards I sat up on the beach, but still on the sand and just continued to watch the waves.
(The most of me you will likely ever see on this journal.)
(I just liked this picture.)
After a while longer we realized that I had been out in the sun for well over an hour and even with sunscreen I was risking sunburn because I burn easily (I had a really mild one a bit of both arms, but it wasn't too bad) so we went back inside and I changed to long pants and a sweater. But I told Kevin, that for the first time, since the migraines started, so over three years now, I felt like myself, for about 30 minutes, while laying and sitting on the beach directly on the sand. Unfortunately once we left the beach the feeling went away, but 30 minutes after 3 years was quite amazing so I will be happy that I even got that much time.
It wasn't much longer after this that I ended up feeling nausea again and a migraine came on and I was basically non-functional for the rest of the day although they did wheel me around in the chair for a while outside on a "walk" but by then I was so light sensitive again I could only look where the sun wasn't and had to shut my eyes a lot. But I enjoyed the day and hope that we can go again so I can get a few more minutes of feeling normal for a little while. Now Kevin is trying to figure out how we can afford to move to a beach town so that he can get me on the beach every week since he knows I haven't felt like myself for a very long time.